Bleeding disorders program

The Janeway Children’s Health and Rehabilitation Centre offers a hemophilia and hereditary bleeding disorders program that serves as the primary hemophilia treatment centre for all patients with bleeding disorders in the province of Newfoundland and Labrador.

What we do

The hemophilia and hereditary bleeding disorders program is based at the Health Sciences Centre in St. John’s, and pediatric patients are followed through the Janeway Children’s Health and Rehabilitation Centre.

Bleeding disorders include:

  • Deficiencies of factors I, II, V, VII, VIII, IX, X, XI , XII and XIII;
  • Von Willebrand Disease;
  • Platelet deficiencies; and
  • Rare disorders (e.g., Glanzmann Thrombasthenia; Bernard Soulier Syndrome; Hereditary Angioedema).

These disorders range from mild to severe. Many are rare, and most are genetically linked through families.

Who we see

We provide care for children and youth up to their 18th birthday; and, we follow adult patients from age 18 years to the end of life.

Our team

Our team is comprised of the following health-care professionals:

  • Hematologists (from both adult and pediatric streams)
  • Nurse practitioners
  • Nurse coordinators
  • Physiotherapists
  • Social workers
  • Administrative assistants
  • Blood bank staff
  • Coagulation laboratories

How to access this service

A referral is required from a health-care provider, such as your family doctor, specialist, or a nurse practitioner.

When your appointment is scheduled, our office will send a letter or reach out via telephone.

Where we are

Room 2J755
2nd floor, Janeway Services
Health Sciences Centre
300 Prince Philip Drive
St. John’s, NL
A1B 3V6

Hours of operation

Monday to Friday, from 8 a.m. to 4 p.m.
For after-hours emergencies, please go to your nearest emergency department.

Pediatric clinics are held approximately every three months (i.e., March, June, September and November). Patients with urgent concerns are seen on an as-needed basis. Children can also receive support through individual appointments with health-care professionals, such as the nurse practitioner, social worker or physiotherapist.

Adult bleeding disorder clinics are held weekly or twice weekly. Adult patients with urgent concerns may also be seen on an as-needed basis when appropriate.

How to reach us

Telephone: 709-777-4388
Fax: 709-777-4726

Patient education resources

Resource materials may be available upon request through the hemophilia/hereditary bleeding disorders program.

Patients and/or families can also find pertinent materials online through the:

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Last updated: 2022-04-01