The cystic fibrosis (CF) program, offered at the Janeway Children’s Health and Rehabilitation Centre, provides a multidisciplinary team approach for the management of this chronic disease for children and their families.
What we do
Cystic fibrosis is a genetic disorder and generally diagnosed with newborn screening, although diagnosis can occur at any age. Typically, diagnoses are made through genetic testing.
The cystic fibrosis program for Newfoundland and Labrador is based at the Health Sciences Centre in St. John’s, and pediatric patients are seen at the Janeway Children’s Health and Rehabilitation Centre.
The cystic fibrosis program provides a multidisciplinary team approach to care and strives to uphold the standards of the Canadian Cystic Fibrosis Foundation.
In addition to clinic services, the cystic fibrosis program provides support across the spectrum of life – from new diagnoses or transplant referral to rehabilitation or assistance with palliative care.
The cystic fibrosis program provides health-care surveillance and required supplies as per the Provincial Government’s Cystic Fibrosis Benefits List under the Newfoundland and Labrador Prescription Drug Program.
Who we see
We provide care for children and youth up to their 18th birthday.
Our team
Our team is comprised of the following health-care professionals:
- Clinic coordinators
- Dietitians
- Nurse practitioners
- Pharmacists
- Physicians
- Physiotherapists
- Social workers
The program is also supported by other health-care professionals, including respiratory therapists, laboratory professionals and medical specialists.
How to access this service
Once diagnosed, you will be followed by the cystic fibrosis team for regular follow-up appointments.
Where we are
Janeway Children’s Health and Rehabilitation Centre
2nd floor, Outpatient Clinics
300 Prince Philip Drive
St. John’s, NL
A1B 3V6
Hours of operation
Monday to Friday, from 7:30 a.m. to 3:30 p.m.
How to reach us
Telephone: 709-777-4389
